Fourteen-year-old Jonathan Pitre from Russell, Ontario is an avid hockey fan. He loves his hometown Ottawa Senators and always dreamed about playing the game. But he never had the chance.
Jonathan, a.k.a the “Butterfly Child,” suffers from Epidermolysis Bullosa (EB), a rare genetic skin condition commonly referred to as “the worst condition you’ve never heard of”. Jonathan was born with EB, and has spent his entire life in intense pain. To help manage his condition and prevent infection, Jonathan and his mom Tina must go through the most excruciating process of Jonathan’s day — his bath. Watch the video below to see what I mean.
Though he goes through excruciating pain everyday even for doing simple activities like bathing, his spirit is unwavering! Watch the video and share your … Baby Boy. When You See Why, You Will Be Brought To Tears.